WHAT'S HAPPENING AT PROJECT ALS

Everyone Has a Role in ALS Research: Kim Trautman, Living with ALS
It would take nearly three more years before she received a diagnosis of a rare genetic form of ALS in October 2022, at the age

A New Chapter in ALS Research, Inspired by Leah Stavenhagen
It was a special opportunity to spend time with this remarkable group of young women living with ALS, their families, and caregivers, and to experience

A Statement From Lori Hermstad: On the Historic Results of the FUSION Trial for FUS-ALS.
Today, we hardly have words. After years of waiting, praying and hoping, the news we have dreamed of is finally here: the Phase 3 FUSION

A Daughter’s Promise
He was diagnosed with ALS only a year prior and his body began to decline fast. There was no happy ending or hope for remission.

Show Up for ALS
THEY SHOWED UP. WILL YOU? Watch the message.♥️ Support the mission. Fund the research. This ALS Awareness Month, familiar faces are coming together for one

Stories of the Season: The Harper Family
One Day at a Time: Jacob Harper’s Journey With ALS Jacob Harper is 26 years old, from southern West Virginia, and living with ALS. According

Carol Kleiner: Medicine Woman
Carol Kleiner was a warrior: wife, mother, grandmother, friend, rower, leader, and a woman who knew what she wanted. If not for Carol and

Stories of the Season: Sue, Martha & Rob
The Family That Jenifer Built There are families formed by blood, and there are families formed by shared purpose. Project ALS was built by the

Stories of the Season: The Hermstads
The Hermstads The following is a personal message from the Hermstad family. Our family unfortunately learnt the devastating reality of ALS when Alex, the first

Melissa Diaz-Viera: December Reflections, 22 Years Apart
We have reached December. This month has always been very reflective for me. As a January baby, December allows me to take inventory of all

Stories of the Season: The Combs Family
We are the Combs family, and Project ALS holds a place in our hearts forever. We lost my late husband to ALS — a fight
