Online Campaigns
Gettysburg Baseball’s Take ALS Yard 2022
Last month, Coach John Campo and Gettysburg Bullets Baseball held their annual “Take ALS Yard” event at Kirchhoff Field
May 10, 2022
No Comments
Recent News
Research News
New Model and Gene Targeting Approach Show Promise for ALS Therapies
Researchers from the Project ALS Therapeutics Core at Columbia (the Core), in a groundbreaking collaborative effort with Ionis Pharmaceuticals, have developed a new tool for studying ALS mechanisms and therapies, as well as a novel approach for treating ALS caused by mutations…
March 10, 2022
No Comments
Meet the Family
The McDaniel Family
“I was diagnosed with ALS in February 2020 after a frustrating year of searching for answers & even longer of progressing symptoms…”
December 22, 2021
No Comments
Meet the Family
The Weber Family
“Our connections to ALS run deep & very personal. Our dad passed away from ALS and, of his nine children, five have been diagnosed…”
December 22, 2021
No Comments
Meet the Family
Janet and Eileen
“My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned…”
December 22, 2021
No Comments
Meet the Family
December 22, 2021
No Comments
Meet the Family
The McGrath Family
“My husband, Mickey, was diagnosed with ALS in 2001 at the age of 49…”
December 22, 2021
No Comments
Meet the Family
The Vierstra Family
“Our family has a deep and multi-generational connection to ALS. Our mother succumbed to ALS in 1987. She was almost 33…”
December 22, 2021
No Comments
Uncategorized
Remembering Jenifer Estess
This month, we remember Jenifer Estess. February 17, 1960-December 16, 2003 “Life isn’t about letting go, but reaching.” Project ALS founder Jenifer Estess died eighteen
December 20, 2021
No Comments
Uncategorized
She Has Hope
Like Rebecca, we must be brave enough to hope. https://www.youtube.com/watch?v=jtYFX4byIyc When 3-time Tony nominee Rebecca Luker was diagnosed with ALS in 2019, she and her
December 15, 2021
No Comments
Uncategorized
Only Seventeen
A mother’s love may be the most powerful force on earth. Consider this: When their young teenagers were diagnosed out of nowhere with a virulent
November 5, 2021
No Comments
News
Announcing the Project ALS Research Advisory Board
Project ALS Announces Research Advisory Board 2.0 Non-Profit ALS Research Leader Gathers a Diversity of Expertise to Guide Next-Phase Progress (New York, NY)
October 19, 2021
No Comments
