Valerie the Disruptor
Project ALS co-founder Valerie Estess sat down with Charles River to talk about how Project ALS is disrupting the norm in order to bring the
June 10, 2022
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WHAT'S HAPPENING AT PROJECT ALS
2022 Tambourine ALS Collaborative Cohort
Project ALS was lucky to join five other ALS organizations at the first in-person meeting of the ALS Collaborative Cohort to discuss issues of access and inclusion within the ALS community
May 25, 2022
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Gettysburg Baseball’s Take ALS Yard 2022
Last month, Coach John Campo and Gettysburg Bullets Baseball held their annual “Take ALS Yard” event at Kirchhoff Field
May 10, 2022
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New Model and Gene Targeting Approach Show Promise for ALS Therapies
Researchers from the Project ALS Therapeutics Core at Columbia (the Core), in a groundbreaking collaborative effort with Ionis Pharmaceuticals, have developed a new tool for studying ALS mechanisms and therapies, as well as a novel approach for treating ALS caused by mutations…
March 10, 2022
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The McDaniel Family
“I was diagnosed with ALS in February 2020 after a frustrating year of searching for answers & even longer of progressing symptoms…”
December 22, 2021
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The Weber Family
“Our connections to ALS run deep & very personal. Our dad passed away from ALS and, of his nine children, five have been diagnosed…”
December 22, 2021
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Janet and Eileen
“My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned…”
December 22, 2021
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December 22, 2021
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The McGrath Family
“My husband, Mickey, was diagnosed with ALS in 2001 at the age of 49…”
December 22, 2021
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The Vierstra Family
“Our family has a deep and multi-generational connection to ALS. Our mother succumbed to ALS in 1987. She was almost 33…”
December 22, 2021
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She Has Hope
Like Rebecca, we must be brave enough to hope. When 3-time Tony nominee Rebecca Luker was diagnosed with ALS in 2019, she and her husband
December 15, 2021
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Only Seventeen
A mother’s love may be the most powerful force on earth. Consider this: When their young teenagers were diagnosed out of nowhere with a virulent
November 5, 2021
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