Just because ALS robs you of your speech, doesn’t mean your voice can’t be heard.
Join those, like Desi and her daughter, for the Don’t Talk-A-Thon and be a part of silencing ALS.
Just because ALS robs you of your speech, doesn’t mean your voice can’t be heard.
Join those, like Desi and her daughter, for the Don’t Talk-A-Thon and be a part of silencing ALS.

It would take nearly three more years before she received a diagnosis of a rare genetic form of ALS in October 2022, at the age

It was a special opportunity to spend time with this remarkable group of young women living with ALS, their families, and caregivers, and to experience