In 2020, Cathy and Richard called Project ALS after hearing about the development of a novel antisense oligonucleotide (ASO) therapy for people living with FUS ALS. So was born NextGen ALS, a Weber family initiative in collaboration with Project ALS that is committed to raising funds for targeted research toward treatments and cures for genetic forms of ALS.
Project ALS co-founder Valerie Estess sat down with Charles River to talk about how Project ALS is disrupting the norm in order to bring the
Project ALS was lucky to join five other ALS organizations at the first in-person meeting of the ALS Collaborative Cohort to discuss issues of access and inclusion within the ALS community
Last month, Coach John Campo and Gettysburg Bullets Baseball held their annual “Take ALS Yard” event at Kirchhoff Field
Researchers from the Project ALS Therapeutics Core at Columbia (the Core), in a groundbreaking collaborative effort with Ionis Pharmaceuticals, have developed a new tool for studying ALS mechanisms and therapies, as well as a novel approach for treating ALS caused by mutations…
“I was diagnosed with ALS in February 2020 after a frustrating year of searching for answers & even longer of progressing symptoms…”
“Our connections to ALS run deep & very personal. Our dad passed away from ALS and, of his nine children, five have been diagnosed…”
“My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned…”
“My husband, Mickey, was diagnosed with ALS in 2001 at the age of 49…”
“Our family has a deep and multi-generational connection to ALS. Our mother succumbed to ALS in 1987. She was almost 33…”
This month, we remember Jenifer Estess. February 17, 1960-December 16, 2003 “Life isn’t about letting go, but reaching.” Project ALS founder Jenifer Estess died eighteen
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