Meet the Family
The McDaniel Family
“I was diagnosed with ALS in February 2020 after a frustrating year of searching for answers & even longer of progressing symptoms…”
December 22, 2021
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Recent News
Meet the Family
The Weber Family
“Our connections to ALS run deep & very personal. Our dad passed away from ALS and, of his nine children, five have been diagnosed…”
December 22, 2021
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Meet the Family
Janet and Eileen
“My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned…”
December 22, 2021
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Meet the Family
December 22, 2021
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Meet the Family
The McGrath Family
“My husband, Mickey, was diagnosed with ALS in 2001 at the age of 49…”
December 22, 2021
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Meet the Family
The Vierstra Family
“Our family has a deep and multi-generational connection to ALS. Our mother succumbed to ALS in 1987. She was almost 33…”
December 22, 2021
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Uncategorized
Remembering Jenifer Estess
This month, we remember Jenifer Estess. February 17, 1960-December 16, 2003 “Life isn’t about letting go, but reaching.” Project ALS founder Jenifer Estess died eighteen
December 20, 2021
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She Has Hope
Like Rebecca, we must be brave enough to hope. https://www.youtube.com/watch?v=jtYFX4byIyc When 3-time Tony nominee Rebecca Luker was diagnosed with ALS in 2019, she and her
December 15, 2021
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Uncategorized
Only Seventeen
A mother’s love may be the most powerful force on earth. Consider this: When their young teenagers were diagnosed out of nowhere with a virulent
November 5, 2021
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News
Announcing the Project ALS Research Advisory Board
Project ALS Announces Research Advisory Board 2.0 Non-Profit ALS Research Leader Gathers a Diversity of Expertise to Guide Next-Phase Progress (New York, NY)
October 19, 2021
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News and Updates
Amylyx, the Core, and the Power of Collaboration
On Wednesday, Amylyx Pharmaceuticals announced that they are planning to file a New Drug Application—the formal submission for a drug to be approved by the
September 17, 2021
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Research News
Next Steps for Prosetin
Prosetin is moving to Phase I clinical trials. View the recording of our live conversation with clinical trial specialist Jinsy Andrews, MD, MSc and regulatory
August 25, 2021
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