A breakthrough study funded by Project ALS defines the critical role of brain cells called “V1 interneurons” in human movement. Because movement is completely compromised in ALS, studying “V1 interneurons” may provide scientists with answers on the causes and progression of the disease. Next studies are already underway at the Salk Institute and Columbia University. Read full study, published in Neuron here
In 2020, Cathy and Richard called Project ALS after hearing about the development of a novel antisense oligonucleotide (ASO) therapy for people living with FUS ALS. So was born NextGen ALS, a Weber family initiative in collaboration with Project ALS that is committed to raising funds for targeted research toward treatments and cures for genetic forms of ALS.