The Hermstad Legacy: Advances in Treatments for ALS

On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen – a novel gene therapy for ALS. Those familiar with rare disease know that little can be accomplished by working alone. A limited patient population demands that those in search of a cure share data, resources, and efforts. They know that collaboration between the medical community, advocacy groups, and industry is the key to success. Join us in recognition of the Hermstad sisters’ extraordinary contribution to ALS research.


Documentary, educational presentations, panel discussions and Q&A featuring:

Ben Stiller, Actor, Director, Writer, Producer, Friend of Project ALS

Julianna Margulies, Actor, Producer, Author, Friend of Project ALS

Valerie Estess, Founder and Director of Research, Project ALS

Erin Fleming, Director of Research Operations, Project ALS

Lori Hermstad, Alex & Jaci’s Mom and Patient Advocate

Dr. Robert Brown, Professor of Neurology and Director of the Program in Neurotherapeutics, UMMS

Dr. Neil Shneider, Director, Eleanor and Lou Gehrig ALS Center, Professor of Motor Neuron Disorders at Columbia University

Dr. Jinsy Andrews, Associate Professor of Neurology, Director of Neuromuscular Clinical Trials at Columbia University

Dr. Frank Bennett, Executive Vice President, Chief Scientific Officer, Ionis

Kristina Bowyer, Vice President, Patient Advocacy, Ionis

Dr. Toby Ferguson, Head of Neuromuscular Development Unit, Biogen

Dr. Lauren Black, Distinguished Scientist, Charles River

Dr. David Fischer, Executive Director, Discovery Sciences, Charles River


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