On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen – a novel gene therapy for ALS. Those familiar with rare disease know that little can be accomplished by working alone. A limited patient population demands that those in search of a cure share data, resources, and efforts. They know that collaboration between the medical community, advocacy groups, and industry is the key to success. Join us in recognition of the Hermstad sisters’ extraordinary contribution to ALS research.
REGISTER FOR FREE HERE
Documentary, educational presentations, panel discussions and Q&A featuring:
Ben Stiller, Actor, Director, Writer, Producer, Friend of Project ALS
Julianna Margulies, Actor, Producer, Author, Friend of Project ALS
Valerie Estess, Founder and Director of Research, Project ALS
Erin Fleming, Director of Research Operations, Project ALS
Lori Hermstad, Alex & Jaci’s Mom and Patient Advocate
Dr. Robert Brown, Professor of Neurology and Director of the Program in Neurotherapeutics, UMMS
Dr. Neil Shneider, Director, Eleanor and Lou Gehrig ALS Center, Professor of Motor Neuron Disorders at Columbia University
Dr. Jinsy Andrews, Associate Professor of Neurology, Director of Neuromuscular Clinical Trials at Columbia University
Dr. Frank Bennett, Executive Vice President, Chief Scientific Officer, Ionis
Kristina Bowyer, Vice President, Patient Advocacy, Ionis
Dr. Toby Ferguson, Head of Neuromuscular Development Unit, Biogen
Dr. Lauren Black, Distinguished Scientist, Charles River
Dr. David Fischer, Executive Director, Discovery Sciences, Charles River
