“My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned. As I learned more about the disease, I only felt more hopeless. I was completely overwhelmed until I found Project ALS.
The connection was immediate upon learning it was started by three sisters and further investigation into their research—collaborative and aggressive—solidified my decision to get involved. I believe in everyone working together, putting aside personal gains to focus on a cure in the interest of time.
Project ALS has given us hope when we had none. I really believe their research will lead to a miracle. I have been overwhelmed by their personal support and attentiveness, especially during this crazy pandemic. They even took time to put a panel together to help us review which clinical trial would make the most sense for Janet to apply… something her own doctor didn’t have time to do.“
In 2020, Cathy and Richard called Project ALS after hearing about the development of a novel antisense oligonucleotide (ASO) therapy for people living with FUS ALS. So was born NextGen ALS, a Weber family initiative in collaboration with Project ALS that is committed to raising funds for targeted research toward treatments and cures for genetic forms of ALS.