Every mile Hugo runs carries a message of strength, love, and belief in a cure.
When it comes to running for the cause of ALS research, Hugo is lacing up for something deeply personal. What began as an unfamiliar challenge has grown into a mission rooted in love and determination. His connection to Project ALS started close to home, and ever since, he’s carried that purpose with every step. A year ago, the idea of running a marathon felt out of reach but today, Hugo is preparing to take on the New York City Marathon with heart, grit, and gratitude. Between a demanding schedule, caregiving, and training, he’s found strength in the process itself, learning that every mile is a reminder of resilience and hope. For Hugo, race day won’t just be about crossing the finish line. It’s about showing up for his wife who was diagnosed with ALS in 2019, for everyone living with the disease, and for the belief that this disease is not incurable, it’s underfunded. Leading up to the marathon, we sat down with Hugo to talk about what drives him to run for the Project ALS mission.
How has your training been going so far?
It’s been going great. I have been working with a trainer, so I’ve been able to keep on track. I am excited for the official marathon but I think the preparation process might be the best part.
What’s been the hardest part of preparing for the marathon?
Getting started. A year ago, I had never voluntarily gone on a run so the first few months were difficult. Also, it can be hard to find the time to run 4 times a week with an already busy schedule between work, social activities and caregiving.
What are you most looking forward to on race day?
The crazy crowd and seeing some familiar faces cheering me on along the way.
Why did you choose to dedicate your marathon to raising funds for Project ALS?
I believe in Project ALS’ mission. I have followed Project ALS for 5 years now and have witnessed their progress and dedication to finding effective treatments for ALS.
What would you say to someone who’s considering fundraising for ALS research in their own way?
Do it! Best case scenario, you will gather some critical funds to help research. If not, you will at least spread awareness about this cruel disease.
What does hope look like to you in the fight against ALS?
Seeing my wife Leah dance again, she wrote a book in french by the title of “j’aimerais danser encore” which translated to: “I would like to dance again”.
