The Hermstads
“Our family has unfortunately known the devastating reality of ALS when Alex, the first of our twin daughters, began experiencing weakness at age 11 that was later diagnosed as an aggressive form of the disease. We sadly lost our beautiful, brave Alex at just 17 years old.
Tragically, in 2019, our other courageous and mighty daughter Jaci became symptomatic at age 25. With relentless and steadfast help of Project ALS, Jaci became the first person to receive a groundbreaking novel medication, which is now in an international clinical trial and offering hope to other FUS/ALS patients. While we are shattered we lost our beloved Jaci too, we are deeply passionate about the research that Project ALS champions, turning heartbreak into progress and bringing us closer to a cure.
Just as our daughters were our whole world, everyone diagnosed with ALS means the world to someone, and in honor of our fearless girls we will continue to stand proud with Project ALS as they refuse to never give up until the day we can celebrate a cure together.”
-Lori Hermstad
Stories of the Season offers a heartfelt glimpse into the families who make up the Project ALS community. ALS takes so much from so many, and these stories are the driving force behind our relentless 26-year fight for effective treatments and a cure.”
