The Weber Family
“Our connections to ALS run deep & very personal. Our dad passed away from ALS and, of his nine children, five have been diagnosed…”
December 22, 2021
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WHAT'S HAPPENING AT PROJECT ALS
Janet and Eileen
“My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned…”
December 22, 2021
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December 22, 2021
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The McGrath Family
“My husband, Mickey, was diagnosed with ALS in 2001 at the age of 49…”
December 22, 2021
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The Vierstra Family
“Our family has a deep and multi-generational connection to ALS. Our mother succumbed to ALS in 1987. She was almost 33…”
December 22, 2021
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She Has Hope
Like Rebecca, we must be brave enough to hope. When 3-time Tony nominee Rebecca Luker was diagnosed with ALS in 2019, she and her husband
December 15, 2021
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Only Seventeen
A mother’s love may be the most powerful force on earth. Consider this: When their young teenagers were diagnosed out of nowhere with a virulent
November 5, 2021
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Announcing the Project ALS Research Advisory Board
Project ALS Announces Research Advisory Board 2.0 Non-Profit ALS Research Leader Gathers a Diversity of Expertise to Guide Next-Phase Progress (New York, NY)
October 19, 2021
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Amylyx, the Core, and the Power of Collaboration
On Wednesday, Amylyx Pharmaceuticals announced that they are planning to file a New Drug Application—the formal submission for a drug to be approved by the
September 17, 2021
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Next Steps for Prosetin
Prosetin is moving to Phase I clinical trials. View the recording of our live conversation with clinical trial specialist Jinsy Andrews, MD, MSc and regulatory
August 25, 2021
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JOIN TEAM PROJECT ALS FOR THE 2021 TCS NYC MARATHON
View the 2021 TCS NYC Marathon Team Project ALS Application Package HERE
July 14, 2021
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Masitinib Voluntary Hold Reinforces Need for ALS-Focused Drug Development
On June 3rd, AB Science announced that they were putting all clinical studies of their lead compound masitinib—including a Phase 3 trial in ALS—on voluntary
June 11, 2021
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