Since 2014, Project ALS has run an online campaign, the Don’t-Talk-a-Thon, during the month of May, in honor of ALS Awareness Month. For one day each year, supporters take a vow of silence to honor those who are robbed of their speech by ALS. Participants share photos and stories of their loved ones who have been affected by ALS through online fundraising pages on social media. Over $500,000 has been raised for crucial ALS research by over 1,000 participants from 48 states and 10 countries, through this impactful grassroots campaign. Check out the results of this year’s campaign at donttalkathon.org
We hope you join us in May 2019.
In 2020, Cathy and Richard called Project ALS after hearing about the development of a novel antisense oligonucleotide (ASO) therapy for people living with FUS ALS. So was born NextGen ALS, a Weber family initiative in collaboration with Project ALS that is committed to raising funds for targeted research toward treatments and cures for genetic forms of ALS.