Lauren Hendel, Brynley Kirchhoff, and Kylan Morris talked to us about growing up with a parent living with ALS, the isolation of grief, the power of action, and why Project ALS continues to give them hope. Their ferocity and heart is evident in every second of the conversation. We couldn’t be prouder of their commitment to Project ALS and their dedication to finding treatments and a cure for ALS.
A Statement From Lori Hermstad: On the Historic Results of the FUSION Trial for FUS-ALS.
Today, we hardly have words. After years of waiting, praying and hoping, the news we have dreamed of is finally here: the Phase 3 FUSION
September 25, 2026
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