What would you do if you lost your voice? ALS robs people, like Joey, of their voice and so much more. For the 9th annual Don’t Talk-A-Thon on May 21st we will be taking an hour of silence to bring awareness to the ravages of ALS and to raise money for ALS research.
Join Joey in the fight and create your fundraising page below.
A Statement From Lori Hermstad: On the Historic Results of the FUSION Trial for FUS-ALS.
Today, we hardly have words. After years of waiting, praying and hoping, the news we have dreamed of is finally here: the Phase 3 FUSION
September 25, 2026
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